The mum of a Kent teenager with a rare disease says the decision to make a potentially life-extending drug available on the NHS is a dream come true. Mel Bolt from Minister has been campaigning for Spinraza to be made accessible to help her daughter Abbie, who has spinal muscular atrophy. The 15-year-old has battled with the incurable muscle-weakening condition since she was just two and is wheel-chair bound.
KentOnline
Podcast - New NHS drug could change teenager's life - 22/05/2019
The mum of a Kent teenager with a rare disease says the decision to make a potentially life-extending drug available on the NHS is a dream come true.Mel Bolt from Minister has been campaigning for Spinraza to be made accessible to help her daughter Abbie, who has spinal muscular atrophy.The 15-year-old has battled with the incurable muscle-weakening condition since she was just two and is wheel-chair bound. https://www.kentonline.co.uk/
- Broadcast on:
- 22 May 2019